Looking Back at Past Generations and the Possibility of Dementia

mom-dad-boat mom-greenwoodlake

Photos: (1) Eleanor and Edward Brophy, (2) Group shot with Edward Brophy, Eleanor (Mom, holding me), maternal grandparents, friends and Marion and Ray Corso, cousins.

This fall has definitely been a time of reflection for me. I can be doing any given thing during the day and a memory of my mother will come across me, leading to a whole string of past memories and thoughts. It makes me feel like she is right there with me. It’s also been a time of thinking of my father’s side of the family, who I basically know nothing about. I barely knew him actually, when I stop to think about it. I have found myself on a quest of researching the past generations in my family history to see what I can learn. Who were they, did they have dementia, diabetes, leukemia, Parkingson’s disease? Who are we as a family?

Last weekend, I started on Ancestry to start my family tree. It’s only been a week and I’ve already learned so much in having found up to 4 past generations. I learned that my paternal great grandfather came from Gibraltor, Spain. His wife was from Ireland.To go further, I will have to sign on for a world search, which of course, I am curious enough to follow through. Out of chance, one of the searches that I had done, pulled up my paternal grandmother in someone else’s family tree. It took me by surprise and I felt excited that it was a good find. Not really knowing yet how to work on this site, I chose to write a message to the owner of the tree to inquire. I was beyond happy when I found that she had replied. What I learned from her reply was that she is my 3rd cousin and lives on the other side of the US. She told me that she has met several cousins on this site who have shared family photos, stories and history. She mentioned that my paternal grandmother had a very rich history. I am in absolute anticipation right now since we will speak by phone today, and she will share with me all of that information on our family from my father’s side. Very exciting stuff.

I’m amazed at how I could have lived this long on the planet and not have known that side of the family, but knowing my father and how reclusive and private he was, I really shouldn’t feel so surprised. But after all, I’m not a stranger and I am a part of that family line genetically, even if he couldn’t deal with them in his life. I live in a town now where I have been asked numerous times if I was related to this Brophy or that Brophy who live here and I would always say no. There seems to be a lot of Brophy’s in this town. Now, I am not so sure since I very well could be related to them. Apparently, my paternal grandfather had 4 brothers and a sister. Who knew…and my father certainly didn’t share, which doesn’t seem very fair. Everybody has the right to know who they are in life through the past generations if only for self identity and health history.

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Mom’s Death Inspires A New Journey of Making a Family Tree…Who The Heck Are We Really?

wedding-2  mom-connnie

Photos are: from right to left (1) Lillian Sarter (Mom’s Mother), Eleanore Sarter, Bruno Sarter (Mom’s Father), Edward Brophy (my Father), Lillian Sarter (Mom’s Sister), Tess Heinke, Paul Heinke (Dad’s Aunt and Uncle), (2) Mom on right, Connie Heinke (Dad’s cousin) on left.

Since Mom’s death from the dreaded dementia, I’ve been thinking a lot about family, who is left and who we are as a group in this world. I mean, who ARE we as individuals, as family members and members of society that have made us who we are today. What type of people did I come from? The person from England who comes here and marries a girl and going on to have children, as in the case of Mom’s grandparents…or the man from Spain who marries a girl from Ireland and creates a family, as in the case of Dad’s grandparents…and so on and so on. Without just one of those people making those particular choices, any one of us in this family might not be here today. It’s a crazy thought, but true. One of the links missing would change history.

In the past years, I have been interested in this subject and had asked my mother lots of questions over the years, but it was mostly with her family, not my father’s. In not knowing a lot about my distant relatives, I’ve been inspired to find out who we are and where we came from genealogically and geographically. Did any of them have Diabetes, Dementia, OCD, Parkinson’s Disease or Leukemia? Did they do anything special in the world to add to society in this country or others? Who are they? Were they good people, bad people, famous people, smart or shallow people? Since I had lived most of my young life with my mother and her parents, I of course, know more about that side of the family. I seem to know a lot about her father Bruno and his family, as there is a family tree in Germany of his lineage dating way back with names and dates as I had mentioned in my last post. Her mother Lillian, my grandmother, is a different story however. I have photos of her mother and father but that was where the trail stopped. I know her father was born in England and her mother was born here. They had 2 daughters, Lillian, my grandmother and her sister Adlaide, who I knew. Anything else regarding her family is a mystery to me. I had always thought while growing up that we were a very small family when in fact, there were more than likely plenty of us.

Eleanor_lillian_adlaide  mom-dad-gg

Photos are: (3) Lillian, Aunt Adlaide, Eleanor (Mom), (4) My Grandmother, Grandfather, Uncle Sam, Dad and Mom

I really know nothing about my father’s family. I didn’t know his mother or father, my other grandparents. I know his mother had issues and his father died the year before I was born. My father lived with one of her sisters when he was growing up and as an adult he would never speak about his parents. Matter of fact, he was like a closed clam…what was he hiding? What’s in the past that kept him so silent all of those years? Very curious. After moving to Commack, many, many people asked me if I was related to this Brophy or that Brophy. Apparently, there are a lot of Brophy’s in Commack. Who’s to say that they aren’t in my family line somehow, someway? That’s what I want to know about…I went to school with a kid named Jimmy Brophy…Who knows…maybe. Stranger things have happened.

So, this weekend, I started an ancestry.com family tree. I’ve added a few names that I know of and will add more as I go through paperwork that I have from the past that have been recovered after my parents and grandparents passed away. These documents are a wealth of information and I am hoping that it will be very interesting in the end on what I uncover. Who knows…maybe something great, maybe not…regardless, it will be our family history either way, good or bad and I will feel connected to a lot of people, some of them might still be alive. As of this minute, I feel as if my mother is the last of the Mohicans…but I may just be surprised at what I find.

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Dementia, Parkinson’s Disease and Acute Leukemia…What Next?

mom-me-boat mom-sister-trip2

Pictured above (1)  A young Mom with a very young me. (2) Older sister Lillian and very young Mom looking very cute with her blonde hair!
Makes you wonder how a person can from there to where we are now.

It’s been a month since I posted last. It’s been a very active month for us after the out-of-left-field, ambush diagnosis of acute leukemia and I’m actually still processing and adjusting to the inevitable. After the diagnosis, things seemed status quo while Shad was visiting. I began to feel that they must have mis-diagnosed her. She was still walking around and looking out the window during the day, still eating her 3 meals a day with in-between snacks, still stubborn, still interested in life.

Then, little by little her mobility started declining. She was getting up less during the day, not as interested in what was going on outside the house or around her, her appetite was dwindling off and was having problems swallowing. It was very obvious that something was happening. She was agitated more than usual, started to feel frightened, especially at night. She also started getting night sweats and became very panicked and scared in the night time hours. One night I slept at the end of her bed so that she couldn’t get up and wander around the house in fear of her falling.

All this happened little by little, but here we are at the end of September and she can no longer stand up or get out of bed. Some days she eats nothing at all. She is still taking fluids although it’s not much to speak about. She sleeps rarely, like she is in a complete manic phase which effects everyone in the house. I’m not at all sure what meds she’s taking now are working for her. I actually think that one of the new meds are having an opposite effect on her.

She’s afraid to be alone and has stated very clearly that she is dying but when asked, she can’t explain why she feels that way…she just senses it, I guess. She said she has seen people and we all know what that means. They are waiting for her on the other side. I can only imagine how frightened that she must be. With the effects of dementia and Parkinson’s disease which makes her not in her right head anyway, and the speed of which she is losing the other abilities in her life due to acute leukemia, she must feel horrified of what is to come next…

and there is nothing that we can do other than to be with her, hold her hand and comfort her until the end.

What else can anyone do at a time like this? We all do the best we can.

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