The First Anniversary. Today is the Last of the Firsts

 

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Today is the first anniversary since my mother, Eleanor Van Meter passed away from a combination of diseases including Dementia/Alzheimer’s, Parkinson’s and Leukemia. September 28, 2014 marked the beginning a year filled with firsts. The first Halloween, the first daylight savings time, the first Thanksgiving, Christmas, New Year’s Day, Mom’s birthday, Valentine’s Day, Easter, Memorial Day, Fourth of July, Labor Day, etc. I’m sitting here on September 28th, a year later in 2015, reflecting on what this year has meant to me.

I didn’t exactly know what to expect during the first year, but I can see that at least a year is needed to come to terms with a death of a parent. Because the year after a death will always be significant while dealing with of all the firsts, it’s probably the hardest year you will ever go through. The fact that it’s a parent, compounds the intensity even further. I don’t care if parent and child got along well, or didn’t get along well, if they were best friends or estranged or indifferent, the effects of losing a parent are unique, because your parents are the reason you are here on this earth. There’s never been a time since you were born that they haven’t been on this earth, until they pass away. Again, it doesn’t matter if you saw them everyday or once in a year, it’s a powerful event for the child/adult to process and come to terms with. For me, this past year was a time to create a new normal.

Photos: (1) above: Mom, young and full of hopes and dreams, (2) below: Mom (Eleanor) and big sister Lillian, (3) Mom and Lynn (me) in my room at her mother’s house. Contrary to this photo, dolls were not my thing, but it was a gift from my father….soooooo, (4) Mom, a few weeks before her death.

Eleanor-LillianMom had a combination of a good life and tragic, all rolled into one. When I look at her childhood photos, I see a happy, normal little blonde haired girl who obviously looked up to and adored her big sister Lillian. That feeling had reflected in our many talks over the years. As she matured into a young adult, she somehow started showing symptoms of what we now know to be Obsessive Compulsive Disorder. It was that disorder that was to become the tragic part of her life. She had said that she was sick a lot when she was young, causing her to miss a lot of school events that were important to her. She thought a possible reason for the OCD was in her determination to avoid germs at any cost. She also once mentioned that a bout of strep throat could have been the cause of the disorder, but I suspect we’ll never know the real reason. What I do know, is that this disorder had caused her 2 marriages and a lot of lost joy in life that could have been. OCD held her hostage in a solitary world which finally left her communicating through phone conversations as she got older.

During her working years, which was also something that she aspired to do since childhood, was a success. She had prestigious positions over the years and was able to hide her OCD while at work. For that, I am grateful, because working in Manhattan was probably her biggest childhood dream fulfilled. Through her working years, she met Dwight Van Meter, her second husband and the love of her life. He was 20 years older than her but it was so obvious that it was a relationship that was made in heaven. He passed away in 1985 and she spend the rest of her life mourning him. Strangely, they were married on September 28th, the same date that she died. Coincidence? I don’t think so. They are together again.

Eleanor VanMeter_Lynn BrophyMy mother was a really good, kind and decent person throughout her life. She raised me the best she could with the challenges that she faced everyday, and with the help of her mother, my grandmother, I became the person that I am today. I can say that I was quite a handful, but in the end, it all worked out well. She worked a lot and I was very much on my own, but it was through her and her mother’s family traditions and morals, that I was able to pull through in tact.

By the time she came to live with me all those years later, she was quite a bit older, very frail, set in her ways and showing the signs of dementia. I didn’t realize at first but after awhile, it became obvious…and even then I didn’t know what was down the road. Dementia/Alzheimer’s disease is an awful thief in the night, stealing your memories and dignity without a concern of the chaos it causes within the brain of the person it’s destroying. While she was here for over the course of 6 years, we were able to have nice conversations, dinners together, watch tv shows, get-togethers with neighbors her age, go shopping…in short, we were able to resolve and make peace with each other in the last years of her life. Not that it all was good times with the challenges of the progression of the dementia, but the good is what I choose to remember.

mom-now1On this day, September 28th, 2014, things were happening all over the world:

  • George Clooney and Amal Alamuddin married in Venice.
  • Volcano in Japan erupted with 30 feared dead.
  • Baseball season comes to an end.
  • Kenyan man Dennis Kimetto sets marathon world record.
  • Air France Pilots end strike after 14 days.
  • Brigitte Bardot turns 80. Ben E. King and Hilary Duff have birthdays.
  • Eleanor Van Meter, my mother, got her wings.

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Remembering My Father on Memorial Day

Edward Brophy   Edward Brophy_2

It’s Memorial Day, a day to remember all of our servicemen who so bravely fought for this country. We all either know or are related to people who have served…and today is their day to be remembered and honored. In my case, my father and 2 grandfather’s who served as far as I am aware of, one grandfather losing his life to the war. As I am enjoying my long weekend at home, I can’t help but take time to think about what this day is really about.

My Mom and Dad were married a long, long time ago and although the marriage only lasted 5 years, I know that my father went on to love my mother for the rest of his life. I didn’t know him very well since I lived with my mother until I was 15 years old, then went to live with my father at almost 17 years old at a point when I was a wild child. It was a rough time in not ever having a male role model in my life and lord knows he wasn’t used to having a teenager in the house either. We made it until I was about almost 19 years old when I moved out to make my own way. It was neither of our faults really, just the nature of the situation.

Photos: above: (1) Dad’s military portrait, (2) Dad in civilian clothing, below: (3) My Mom & Dad in the early years, (4) another really old military photo of my father, Edward Brophy.

mom-dad-boatI remember as a child always idealizing my father, carrying photos of him everywhere that I went. Fact is a girl needs a father as he’s the first male role model in her life and will form all the rest of her relationships with men moving forward. As with everyone, I grew up, got on with my life, had my own family and very often, having the same rocky roads, and as the saying goes…history repeats itself. No matter, I am fine, and I think that I’ve turned out pretty well considering the bumps in the road.

My Dad loved to dance, loved his beef stroganoff, beer, a good party, football and loved to watch the old war movies on tv. As with many servicemen, it’s almost as if he couldn’t get his military days out of his heart and soul. His laugh was talked about throughout his whole life because it sounded very funny, almost like a donkey, lol…it made other people laugh too. He was also, oddly enough, rather reclusive and kept within himself for the most part. He had strange beginnings in that his father, my red-headed grandfather, died while serving our country. His Mother, Helen, couldn’t deal with the loss and had a mental breakdown leaving her unable to handle everyday life. My father eventually had to go to live with his cousins who took care of him. I never knew either of my father’s parents, my paternal grandparents and only found photos of them after his death. For some reason he didn’t want to share these photos with anyone.

Edward Brophy_4This past September, after a long bout with dementia/Alzheimer’s, Parkinson’s and finally leukemia, my mother passed away. In the months afterwards, I’ve been slowly going through her papers and journals finding an array of things. One of these things are the above photos of my father. They were hiding neatly behind my original birth certificate, which back then was a letter sized certificate with a newborn footprint along with the usual information, set in a padded presentation folder. I was amazed to find these photos and it was if she wanted me to find them someday when the time was right. I’d say the timing was very good since I am able to post them on the first Memorial Day after her death. Dad has been gone for many years now, after a battle with smoking related heart disease and emphyzema, but I’m sure he would be happy that I finally have found these photos when I did.

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In the Land of Dementia, Every Day is a New Day!

Still home on medical leave so naturally I am getting up about an hour later than my normal 5 am alarm which has been absolutely delightful for a change. This morning I wake up to find Mom very quietly sitting on her bed and starring at her shoes, right hand shaking wildly from the Parkinson’s involvement. I ask her what she is doing and as usual, she replies I don’t know. I say to her that maybe she should lay down for a few minutes until Cardine arrives because she would be more comfortable and she agrees, but doesn’t respond. Every day around here with Mom is a new day in her progress in dementia.

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I’ve noticed this week that she is very unresponsive to what we are saying to her. For instance, last night I am asking her to lay down because it was bed time. She totally heard what I was saying, and even agreed but when it was time to follow through, she had no idea as to what to do. What is that? I am having a hard time understanding. She hears me, she agrees but then doesn’t know how to do it. Wouldn’t it just be instinct, something that she just does without thinking? Of course, I am probably all wrong about that as the mind is mystery but I am sure the doctors have a word for this stage of the behavior. This scene from last night played out by Vladimir coming in and physically lifting her up and gently putting her in the bed.

This week I have noticed that she is slower and more unsteady on her feet. We have tried to put the walker in front of her for a more steady and secure walk. sometimes she accepts it and sometimes not. She’s definitely at the point where she will need both a walker and transport chair to get around as just walking from the kitchen to her bedroom is a far walk for her. Seems that in the last year, there has been a huge decline in her disease. You don’t really notice it so much day to day, yet when you look back weeks and months, it becomes very obvious that she has spiraled downward. You can only do the best that you can to make the day a good one for her. Cardine accomplishes that with everything she does. They normally have a very good day with Cardine engaging her in puzzles, coloring, conversation, newspaper reading. They do it together, even if Mom doesn’t particiate. Cardine will sit across the table and just do it while Mom watches her and she seems interested and engaged. Cardine is a very loving, patient and caring home aide. I am very happy and blessed to have her in our lives.

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