The First Anniversary. Today is the Last of the Firsts

 

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Today is the first anniversary since my mother, Eleanor Van Meter passed away from a combination of diseases including Dementia/Alzheimer’s, Parkinson’s and Leukemia. September 28, 2014 marked the beginning a year filled with firsts. The first Halloween, the first daylight savings time, the first Thanksgiving, Christmas, New Year’s Day, Mom’s birthday, Valentine’s Day, Easter, Memorial Day, Fourth of July, Labor Day, etc. I’m sitting here on September 28th, a year later in 2015, reflecting on what this year has meant to me.

I didn’t exactly know what to expect during the first year, but I can see that at least a year is needed to come to terms with a death of a parent. Because the year after a death will always be significant while dealing with of all the firsts, it’s probably the hardest year you will ever go through. The fact that it’s a parent, compounds the intensity even further. I don’t care if parent and child got along well, or didn’t get along well, if they were best friends or estranged or indifferent, the effects of losing a parent are unique, because your parents are the reason you are here on this earth. There’s never been a time since you were born that they haven’t been on this earth, until they pass away. Again, it doesn’t matter if you saw them everyday or once in a year, it’s a powerful event for the child/adult to process and come to terms with. For me, this past year was a time to create a new normal.

Photos: (1) above: Mom, young and full of hopes and dreams, (2) below: Mom (Eleanor) and big sister Lillian, (3) Mom and Lynn (me) in my room at her mother’s house. Contrary to this photo, dolls were not my thing, but it was a gift from my father….soooooo, (4) Mom, a few weeks before her death.

Eleanor-LillianMom had a combination of a good life and tragic, all rolled into one. When I look at her childhood photos, I see a happy, normal little blonde haired girl who obviously looked up to and adored her big sister Lillian. That feeling had reflected in our many talks over the years. As she matured into a young adult, she somehow started showing symptoms of what we now know to be Obsessive Compulsive Disorder. It was that disorder that was to become the tragic part of her life. She had said that she was sick a lot when she was young, causing her to miss a lot of school events that were important to her. She thought a possible reason for the OCD was in her determination to avoid germs at any cost. She also once mentioned that a bout of strep throat could have been the cause of the disorder, but I suspect we’ll never know the real reason. What I do know, is that this disorder had caused her 2 marriages and a lot of lost joy in life that could have been. OCD held her hostage in a solitary world which finally left her communicating through phone conversations as she got older.

During her working years, which was also something that she aspired to do since childhood, was a success. She had prestigious positions over the years and was able to hide her OCD while at work. For that, I am grateful, because working in Manhattan was probably her biggest childhood dream fulfilled. Through her working years, she met Dwight Van Meter, her second husband and the love of her life. He was 20 years older than her but it was so obvious that it was a relationship that was made in heaven. He passed away in 1985 and she spend the rest of her life mourning him. Strangely, they were married on September 28th, the same date that she died. Coincidence? I don’t think so. They are together again.

Eleanor VanMeter_Lynn BrophyMy mother was a really good, kind and decent person throughout her life. She raised me the best she could with the challenges that she faced everyday, and with the help of her mother, my grandmother, I became the person that I am today. I can say that I was quite a handful, but in the end, it all worked out well. She worked a lot and I was very much on my own, but it was through her and her mother’s family traditions and morals, that I was able to pull through in tact.

By the time she came to live with me all those years later, she was quite a bit older, very frail, set in her ways and showing the signs of dementia. I didn’t realize at first but after awhile, it became obvious…and even then I didn’t know what was down the road. Dementia/Alzheimer’s disease is an awful thief in the night, stealing your memories and dignity without a concern of the chaos it causes within the brain of the person it’s destroying. While she was here for over the course of 6 years, we were able to have nice conversations, dinners together, watch tv shows, get-togethers with neighbors her age, go shopping…in short, we were able to resolve and make peace with each other in the last years of her life. Not that it all was good times with the challenges of the progression of the dementia, but the good is what I choose to remember.

mom-now1On this day, September 28th, 2014, things were happening all over the world:

  • George Clooney and Amal Alamuddin married in Venice.
  • Volcano in Japan erupted with 30 feared dead.
  • Baseball season comes to an end.
  • Kenyan man Dennis Kimetto sets marathon world record.
  • Air France Pilots end strike after 14 days.
  • Brigitte Bardot turns 80. Ben E. King and Hilary Duff have birthdays.
  • Eleanor Van Meter, my mother, got her wings.

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Can an Alzheimer’s Patient Choose When Their Time is Up…I Believe My Mother Did

Eleanor Brophy-wedding  Eleanor-Lillian

It’s mid July, with a very hot summer Sunday upon us. Can hardly believe that we are almost halfway through the summer already. We patiently wait for summer through the long winter months with its miserable weather, which seems to be a lifetime, only to see summer fleeting right under our nose.

For those of us who are working a Monday through Friday schedule, the weekends are especially important to us and I am no exception. Weekends are sacred, even though no major, monumental or earth shattering events take place in my life. I am happy with status quo as long as status quo is peaceful, happy and healthy. What else can I ask for? What is left really other than winning the lottery! First you should be happy and healthy, as being wealthy can’t do that for you. Lord knows, it could help, but it won’t fix everything. Since my mother Eleanor passed away last September, it’s been a year of unfolding, adjusting and finding a new normal. Since she was a very private person, I discover new things about her and the situation every time that I look into her papers and journals.

Having said all of that, I was home yesterday with a mostly cloudy day and a little time on my hands. I decided to go through the mountains of papers and things on my table so that I could organize and file papers away where they belong. I came across an over sized manilla mailing envelope that my mother had sent to me years earlier, which I had set aside to look at again when time allowed. Back then, my cousin Sam’s wife Charlotte was doing a family tree of my mother’s side of the family and also of Sam’s father’s side of the family. She had learned a lot in her research that I had also wondered about. In the illustration of the tree, Charlotte had written notes and questions for my mother to answer since she was the only one left from that generation in our family who could possibly shed light on her questions. Back then, she showed no signs of Alzheimer’s disease so she was able to fill in a lot of blanks.

Some of the questions that Charlotte asked were about names such as Jessie, was it a male or female in this instance, or marriage dates and deaths. She had no way of knowing our side of the family because Sam’s mother had died years ago of Leukemia and his father had eventually remarried, which forced our side of the family to a distance of cross-country. New wives are never comfortable with the previous, especially where children are concerned, right or wrong, it’s a fact. Needless to say all of us kids and cousins were cheated of a connected family relationship, which was probably more my loss than theirs, mainly because I was an only child in a broken household, in desperate need of a large family connection.

Mom-Van_1979 Mom_Van_xmasMom wrote notes on the side of the family tree that Charlotte sent and as I read through it, all seemed normal and interesting, until I came across something that still has me scratching my head, even today. Years ago, back in 1970, Mom married a man named Dwight Van Meter, an advertising executive and photographer, 20 years her senior, living in New York City, whom she met through one of her own prestigious jobs. She wasn’t one to fall in love easily, but she fell hopelessly in love with Van, as he was known, and in 1970, they married. Then, in 1985 when Van passed away after care-taking him at home, she went into mourning until her own death.

She was living in NYC at the time of her marriage and I was off living the hippie experience on Long Island. She was very private about her life and it wasn’t until afterwards, did I learn of her marriage to Van. It was okay, I didn’t mind at all, I was very happy for her and her new life, while I myself being wild and crazy in my own life, which probably wasn’t the smartest thing that I’ve ever done if the truth be told. But it was what it was, and today, in hindsight, it still was what it was and I accept that. What I am trying to say is that, I never really made a mental note of the date they got married. I was way too involved in living my own life at the time as most 21-year-old kids tend to do.

Photos: top: (1) Mom and her sister Lillian on a wedding day, (2) Mom and Lillian young and pretty with the rest of their lives ahead of them,
(3 + 4) Mom and Van, the love of her life, (5) Mom’s pin that she wore on her clothing everyday while living with me. She came to me with this pin. Even though she eventually didn’t remember, she always had to have to pin on. Love is deeper than Alzheimer’s disease.

Van buttonIt wasn’t until yesterday, when I was looking at the notes written in my mother’s handwriting, that I had a HUGE, COLOSSAL, GOOSE BUMP WOW MOMENT. My mother and Van got married on September 28th, 1970. My mother passed away with her diseases of Alzheimer’s/dementia and Leukemia on September 28th 2014…exactly to the date, 44 years. What are the odds of that happening…I mean, what’s the chance that she would have died on that exact day? I am a firm believer in the “there are no coincidences” mentality. She spent the last 29 years mourning Van’s death and writing powerful and emotionally written journals about her deep grief. Before her diseases set in, she made me promise that I would scatter her ashes in the exact place where she had spread Van’s ashes, and I have a lot of maps and instructions that she had sent to me through the years outlining her wishes on that subject. Of course, I promised and will honor her wishes when finances allow. But think about it…coincidence? I don’t think so…I believe in my heart of hearts, that even in her state of mind, that she chose the day she would die and that he came for her on new journey. I truly believe that they are together again, finally, without the indignity of the diseases and pain that they suffered in the end. A true love story.

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Remembering Mom, Our Struggles, Our Blessings and Dementia on the First Mother’s Day After

Eleanor_Sarter_Lynn_4  Mom-babyme

It’s been 8 months since Mom passed from her dreaded diseases and the first Mother’s Day since, is upon me. At this time, I can’t help but reflect on our relationship over the years, both with dementia and before dementia and Alzheimer’s worked it’s evil magic.

My mother, Eleanor Van Meter, had always wanted a career, going as far back as her childhood. Some kids dream of being married with kids and others yearn to be in the business world, in the big city, as in the case of my mother. As a matter of fact, we had that very discussion after she came to live with me. She admitted that motherhood and having children wasn’t on her list of things to do and that working and career had been her big dream in life. But, as fate would have it, “oppsey”…I came along, much to her surprise. I’m sure my arrival put quite a damper on her plans in the business world but she stepped up and made the best of it, dealing with it in the best way she was able at the time, with the help of her parents, my grandparents. I think that even with all the adversities and bumps in the road throughout the years, I turned out okay. That means to me, that she did good!

Photos: above: (1) Mom and Me, on vacation, (2) Mom and Me at a few months old. Below: (3) Mom and Me at Greenwood Lake, (4) Mom with her grandchild Shad

Eleanor_lynnI remember that conversation as if it were yesterday, although in reality it was about 4 years ago. She was already in the throws of dementia but it wasn’t at the crippling stage at that point, so thankfully, our conversations were both informative and memorable. Even though nobody would especially choose to hear that kind of news, I wasn’t surprised, nor was I resentful. I guess, I kind of sensed it as I was growing up. Looking back at childhood, there wasn’t a time that I can remember that Mom wasn’t working in NYC at some big company, leaving in the early morning and arriving back home at night. I was alone a lot, coming and going pretty much whenever the spirit moved me. Everybody, including my mother, was entitled to live out their dream and although life wasn’t easy back then for either of us, she adequately provided for me. We were far from well off financially and there were times that I walked around with holes in my white keds and looking like a ragamuffin compared to my friends, but hey, that was the style back then…bobby sox and keds with holes in the toes! It’s ok…I was never hungry and always had a roof over my head. Also, a lot of time was spent at my grandparent’s house and I loved being there too so it was all good. They didn’t work and I felt very comfortable with the dynamic and normalcy of that household, which I’m sure, is part of the reason that I am as normal as I am today.

As a kid, I recall meeting Mom every night at a designated spot after she got off the train from work and we would go to eat dinner out together. We would go to Jahn’s, get Chinese take out, sit at the Hamburger Express and watch the train deliver our burgers or just get a pizza. We didn’t eat home much, which probably accounts for my lack of expertise in the kitchen and my disinterest of home entertaining! I could choose to look at this in one of two ways….one, we were so different than my friends who had home cooked meals every night, boo-hoo….or two, none of my friends got to eat out every night, so I’m pretty lucky! I chose the latter way to think of it! Actually today, I almost never get to eat out anymore, so it’s looking pretty appealing to me!

shad_momI have memories of Mom trying to wake me up in the morning to go to school…probably around the grade school days. She’d come in my room full of energy and determination, singing “You’ve got to get up, You’ve got to get up, You’ve got to get up in the morning”.  It sounded like an army style thing with a bugle, something that she might have picked up during her growing up years…but I can remember her singing like it were yesterday. After the song, she would bring in a cup of tea, sometimes different types of tea such as Earl Grey, Darjeeling, Oolong or English Breakfast tea. She is the one who introduced me to tea and the different varieties that I still love to this day.

I also remember the day I turned into a girl from a tomboy, as we stood in front of the mirror in my bedroom trying to figure out how to make my hair into the perfect Flip with a headband, just like Patty Duke’s hair. The headband style loomed large in my transformation as I recall. Even though we were not like most mothers and daughters, she tried to do good things for me as best she could as I was growing up. It wasn’t easy either since I was quite a handful being a hyperactive child with very rebellious tendencies.

As adults, our relationship was mainly by phone since she had moved to California back in the 70’s. In California, she married the love of her life Dwight Van Meter, and I was living life hippie style on Long Island…Age of Aquarius! We sure did go through a lot of stages through the years. But we had great conversations, mostly on Sunday nights just as her and her own mother once had in adulthood. We talked about everything, the happenings of the day and week, the dogs and their antics, about her job and books that she might have read. Later, we talked about writing and illustrating a children’s book together, which never came to fruition, although, I’ve considered following through with writing it in her memory. There were a lot of little things that were left unsaid due to her disease that I now wish I had said, but even though, I feel that we did come to terms together with our relationship…and she came to terms finally, with her OCD disorder that crippled most of her life.

No, life wasn’t perfect…she wasn’t a perfect or typical mother and I wasn’t a perfect or typical kid, we were just human. BUT…she was my mother and I was her kid and we both did the best we could in an imperfect world with the cards that we were dealt. I don’t have a lot of early memories, but I will remember her by the ones that I do have. Our time together this time around didn’t come with huge, monumental happenings and events, we were simple people coming from simple beginnings living a very simple life. Hopefully, through the years, little memories of the past will come back to me and I will consider them a visit from my mother.

Happy Mother’s Day Mom, wherever you are!

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First Holiday Season After Mom’s Departure. Dementia and Leukemia Suck!

 

Mom_xmas_2013            tree

Photos: (1) Mom opening her gifts, Xmas 2013, (2) Our Skinny Little Xmas Tree,
Below: (3) Mom at Xmas Time in California during Better Times.
 

Holiday time is upon us and it will be the first Christmas since Mom’s death. Still hard to believe, but it’s the first Christmas that she won’t be around…in California or here with me…feels a little strange. I guess the first holiday, things always feel strange and definitely commands thought.

As I put up the little tree last weekend, immediately, thoughts go back to last year when Mom actually helped me to decorate the tree, which was unusual. Since she came to live with me, she seemed childlike at Christmastime and even though she didn’t have any want-lists, she seemed excited the same way everyone feels this time of year. The season seems to bring out warm feelings in everyone and she was no exception, even with her state of mind and the depth of her dementia. I’d give her an ornament and say….ok, find a nice spot on the tree for this one. She would look around and after carefully thinking it over, then put it in a good place. She’d stand there looking at everything just being happy with the day and the excitement in the air.

Eleanor-Van-Meter_kitchen

When Mom lived by herself in California, I’m sure she must have felt the holiday spirit since she would always send a gift and cards filled with love and holiday spirit. But I know in my heart that she didn’t have a tree or decorations around the house. I don’t think it was because she wasn’t feeling it….I think it was more associated with the OCD disorder that she suffered with which was crippling to her.  And, for all I know, the dementia was probably slowly creeping in giving her a slanted way of handling things. Coming to live with me is really the best thing that happened to her since she lost her husband Dwight Van Meter. Even with the dementia marching on, I believe that she started to enjoy life a little more than before knowing that she had no worries with her caregiving. We live somewhat normally, well, as normal as you can these days…but it was good for her to be around people to pull her out of her comfort zone.

This time of year, we should think of the people, like my mother, who have disorders, diseases and circumstances that prevent them from enjoying life and the warmth of the season. Today’s world has become very commercial and because of that, sometimes remembering the spirit of the season is forgotten and these people who are just a little bit different, are lost in the shuffle. It’s not about the biggest and most expensive gift you can get….its a celebration and the warmth and opening of hearts on this important day for Christians. Because Mom lived during the depression, she as all the people back then, got back to basics knowing that there was joy in the season in just being with family, together in a warm home, with a holiday dinner, being grateful for what they had. I wonder how the elderly people in nursing homes are feeling, those who don’t have the luxury of being with their caregivers and family members during the holidays?

Today, I am thinking about the elderly who have nobody during this holiday season!

 

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